By ACCORDANT HEALTH SERVICES
The World Federation of Hemophilia is an international, not-for-profit organization located in Montréal, Canada. The organization was founded in 1963 by Frank Schnabel. The World Federation of Hemophilia is dedicated to introducing, improving and maintaining care for persons with hemophilia and related disorders. Staff and volunteers help member organizations, healthcare providers and governments deliver quality care. The organization adapts its work to fit the needs of each country and helps develop hemophilia services, provides workshops, trains fellows, provides education, fund raises and works to ensure that at least $8.00 of hemophilia care is provided from every dollar received. You can contact the organization at:
World Federation of Hemophilia
1425 René Lévesque Boulevard West, Suite 1010
Canada, H3G 1T7
Tel: (514) 875-7944
Fax: (514) 875-8916
The National Hemophilia Foundation is based in the United States. This organization is committed to finding the cures for hemophilia and other inherited bleeding disorders and to prevent and treat the complications of these disorders. Through its national staff and network of community chapters, the organization provides education, advocacy and research. The National Hemophilia Foundation maintains HANDI, an information clearinghouse on hemophilia and related disorders. You can contact the organization at:
National Hemophilia Foundation
116 West 32nd Street, 11th Floor
New York, NY 10001
Phone: (212) 328-3700
Fax: (212) 328-3777
HANDI Phone: (800) 42-HANDI
HANDI Fax: (212) 328-3799
Email Webmaster: email@example.com
Email HANDI: firstname.lastname@example.org
Local Hemophilia Foundations
Many states have local chapters loosely affiliated with the NHF. These chapters are advocates for patients and their families with bleeding disorders and can be a good source for local information and support. Many have social activities, which provide a forum for individuals to meet one another and share experiences. They also have educational seminars. Local chapters can be located on-line.
Last Modified Date: July 31, 2009 © Accordant, A CVS Caremark Company.� All rights reserved.
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